Some Basic Info

I was first diagnosed with malignant brain tumors on 11-20-08 and I finished treatment for those on 4-13-09. I was recently diagnosed with a recurrence on 12-08-09. I set up this blog so people could follow along with my progress and keep up with what is going on in my treatment. I also wanted to put up information from my first go round so people could learn a little bit about what happened to me before.
The blog is set up with the newest posts first. Sometimes I will post stories from my first experience, in which casse it will be slightly out of order, but the titles will let you know. If you want to look at older posts, which may provide a better idea of the whole picture, use the "Blog Archive" tool on the right side of the page to browse them. The titles of the posts should be pretty self-explanatory. If you don't really know that much about me, or what happened, you should check out these two posts first: this one about what's happening now, and this one about my first experience.
Feel free to leave comments, it should be open to everyone now. Thanks for visiting, I hope this little blurb clears up some confusion, and I hope you like the blog.

Wednesday, February 3, 2010

What's Coming Up

I'm just going to do a quick post about what's happening in terms of my treatment in the next few days.

On Wednesday and Thursday, the 3rd and 4th of February, I have to do a second round of stem-cell harvesting. The doctors weren't able to get as many stem cells as they needed, so they have to get some more so they have enough to successfully complete the latter part of the treatment (see my earlier post). The doctors weren't concerned with the fact that they weren't able to get enough cells during the first harvest. Me having had chemotherapy and radiation from the first tumor means that my body already produces less stem cells than the average person, so the doctors weren't surprised that I needed to have a second harvest. In total, the doctors want to have at least 2 million stem cells, and they got 1.35 million from the first harvest, so they should have enough after this second harvest.

On Friday, the 5th of February, I start my second round of regular dose chemotherapy. As with my first round, I'm going to be in the hospital for the whole duration so that they can monitor me. Because I had a reaction to the Ifosfamide from the first round and they don't want to use it anymore, I am going to be getting a new combination of medicines. As opposed to the Ifosfamide, Carboplatin, and Etoposide I received last time, this time I'm getting Cisplatin and Etoposide. Cisplatin is a related drug to Carboplatin, it is just a little more aggressive, and thus a little more toxic. So the side effects of the Cisplatin will probably be similar to the side effects of Carboplatin, just a little worse. The nasty long term side effects that Cisplatin is infamous for (hearing loss, kidney problems) occur in patients who have multiple rounds of treatment with it, I'm just having one, so no one is too worried about that. Also, to prevent the chemo from sitting in my kidneys, I'm going to have to have a lot of fluid replacement, which conflicts with me taking my medication for my Diabetes Insipidus, so I'll probably be in a similar situation to the last round of chemo where I have to have a catheter just so I don't have to get up to pee every hour.
I'm going to be receiving the chemo over the course of 5 days, so I'll be in the hospital at least through Tuesday, but hopefully everything goes smoothly and I can leave soon after that. I'll try and post some kind of update as soon as I can afterwards. I'm prepared for it, and I'm going to make sure they keep me full of anti-nausea medicine, keep my fingers crossed and hope for the best. Wish me luck!


doweiss said...

Good luck, Miles. We'll keep our fingers and toes crossed, too. I know the very serious medicine in the chemo and your determination will prevail, and you will be healthier soon.
Thanks so much for keeping us informed. You are amazing.
Mrs. Weiss

dvplvp said...

dude you rock so get ready to chill a little....hope this round is easy and smooth sailing....i hope you ate your veggies tonight...i made lots of em for you!! xoxo Laura and all the VPS

Clyde said...

Hello Miles,
Miles may set the distance between us pyhsically, but thoughts of healing energy are just a second away. I managed to have my circle of friends keep you in their thoughts and meditations. I encourage strength and the Power to rid negative cells from your system. I am thinking of you sir. I surround you in Green Healing Light. Your Austin Friend and Fellow Cancer survivor
PS. I am one thought away!

Clyde said...
This comment has been removed by the author.
Amanda said...


I work at Saint Francis Medical Center in Cape Girardeau. Your grandpa gave many of us the link to your blog. He is so proud of you and we often ask him for updates on how you are doing.

Best of luck to you! You have a whole lot of people in Cape Girardeau praying for you!!

Amanda C. Schaefer

Gillian Barr said...

Hi Miles-
You are in our thoughts and prayers. Your strength, optimism and humor shine through.
Big hug sweetheart,
Gillian Barr