Some Basic Info

I was first diagnosed with malignant brain tumors on 11-20-08 and I finished treatment for those on 4-13-09. I was recently diagnosed with a recurrence on 12-08-09. I set up this blog so people could follow along with my progress and keep up with what is going on in my treatment. I also wanted to put up information from my first go round so people could learn a little bit about what happened to me before.
The blog is set up with the newest posts first. Sometimes I will post stories from my first experience, in which casse it will be slightly out of order, but the titles will let you know. If you want to look at older posts, which may provide a better idea of the whole picture, use the "Blog Archive" tool on the right side of the page to browse them. The titles of the posts should be pretty self-explanatory. If you don't really know that much about me, or what happened, you should check out these two posts first: this one about what's happening now, and this one about my first experience.
Feel free to leave comments, it should be open to everyone now. Thanks for visiting, I hope this little blurb clears up some confusion, and I hope you like the blog.

Thursday, February 18, 2010

Update! (Updated)

I ended up not having surgery this last go round in the hospital. I got blood transfusions to hopefully raise my blood levels to a point where they would be comfortable with surgery, but even with the transfusions, my blood levels were too low.

What ended up happening is my neurosurgeon, Dr. Alden, drained the pseudomeningocele and wrapped a very tight pressure dressing on it, in the hope that it would either heal itself, or stay manageable until I could have surgery.

That's most of the fluid from the first time they drained it.

Thats all the fluid from the second time they drained it: about a week later.

Again, I know this isn't a ton of information, I wrote this post on my phone as well. I've just been having really bad headaches because of this whole thing, and it's much easier to just grab my phone while I'm laying down and post something small. Also, as soon as I feel better, I'll update this and the previous post with more information and more about my actual experience.


katamaran8 said...

Miles, you are an amazing young man. Thanks for keeping this blog. There are people you barely even know, like me--your "step-aunt"(?), who are sending strength and good wishes your way. Hang in there Miles.

-Katie Baar

Aunt Margaret said...

Amazing Miles,

You write/type better on your phone, from a hospital bed, doped to the max, and in pain, than most folks I know do under normal circumstances. When it comes to you, wonders truly never cease.

You are also bringing our extended family closer together in awe!

Grandma Bev said...

Hi Miles!